On Saturday, we got up at 10:00, and Alex took me to the shower, and Amy showered me. When it was done, Amy moved me to the bedroom, and Alex got me dressed. We went to the kitchen and did my drugs and shake (I am using one shake at a time). Then I went to the office, and at about 1:30, Alex did a shake. Then Amy, Michelle, and Helaina went to Alyssa to see the children. Alex gave me another shake around 3:00, and my mom came by for a few minutes. Amy, Michelle, and Helaina arrived at 6:30, and Alan brought dinner. Alex got me dinner in the living room (drugs, shakes, and PainQuil). That PainQuil made me so tired that I did not remember much. I ended up in my bed and went to sleep. Alex went to his mom’s house.
On Sunday, Alex came back at 10:30, and we got up at 11:00. I took a shower with Amy, and Alex helped me get dressed. We went to the living room for breakfast, and about 2 hours later, we had lunch. I went to the bathroom and then into the office. Using the bathroom is very difficult. I am constantly leaning left or right; a couple of times, I almost fell. At 4:45, Alex gave me one and a half shakes. A while later, I had shakes and drugs, then they took me to the bathroom to brush my teeth; it was not comfortable. Then I went to bed.
On Monday, I had the Radicava. A little while later, Amy showered me, Alex dressed me, and then we went for breakfast. After that, I went to the office and did some stuff. Amy went to do some errands. Around 2:00, we had my lunch, and at 3:00, my physical therapist stopped by. Around 4:30, I had my shakes and then waited in the living room for dinner. After Amy and Alex had dinner, I had dinner, then I went to bed.

Tuesday was early. Amy gave me the Radicava, then she went to shower. When finished, she called Alex to get me to the bathroom, and Amy showered me. Then Alex got me dressed and took me to the kitchen, and I had my breakfast. Have to say that the amount of drugs is crazy: 6 at breakfast and four at dinner. When we were finished, I went to the bathroom and then to the car. I got to the gallery around 12:00, and Alex gave me one and a half shakes by 1:00. At about 4:00, Lance gave me two B12 injections, and then Alex gave me two protein shakes. We left the gallery about 5:30, and it was a long ride home. The chair in the Jeep is not comfortable; it causes pain in my butt, and I am constantly leaning to the left. I decided not to go to the gallery. When we got home, I had dinner, Amy gave me some ice cream (which I could not eat), they brushed my teeth, and I went to bed.
On Wednesday, Amy gave me the Radicava, then Alex got me to the bathroom, and Amy showered me. Alex got me dressed and in the office, then he took Amy to the train. When he got back, I had my breakfast in the office. At 1:00, I had my lunch. About five, I had another shake, and at 7:00, I had drugs and shakes and had a serious problem. Amy called the ambulance. EMS showed up within 10 minutes. They did some tests and took me to the ambulance. I went to Mercy Hospital. They did some tests, and several hours later, they finally gave me a room where Amy stayed.

On Thursday, they did lots of tests. Amy and Alex were there (Alex went to the house at night). One of my issues was salvia, and they didn’t give me protein shakes until about 5:00 pm, which isn’t good. The staff were great, and there were a lot of them. Donald came by at 8:30 and left around 9:00, and Mark came by around 9:15 and stayed about 30 minutes. They finally did an MRI at 10 pm and gave me valium so that I couldn’t take the RSO. I ended up staying most of the night because of the salvia, and I needed cool air.
Friday, I had to wait for the MRI results and do an EEG test before they would release me. Amy assisted the nurses with my medications and feedings. A woman came to do the EEG and wanted me to close my eyes. I could not. Amy rubbed my arm and helped keep my eyes closed. They expedited the results. Everything was fine. They took me home in an ambulance. Alex had to get me off the stretcher and onto the chairlift. I went to the living room chair until I wanted to take a shower. I had an issue with my throat. Amy went to get me ice cream to see if that would help. I didn’t. I tried the BiPap machine, but could only use it for 15 minutes. We kept the window open for fresh air. I was finally able to sleep, but I woke up several times and felt hot, so Amy turned on the cool air.
On Saturday, we stayed in bed late. Amy gave me some drugs through the feeding tube while I was in bed. An hour later, I needed to go to the bathroom, and then we went to the kitchen to have some medicine and shakes. Alex also took me to the living room. I spent most of the day in my chair in the living room. Amy and I watched movies. I took a nap. Amy did the formula and drugs around 8:00. Alex took me to the bedroom around 9:00. At 10:00, Amy gave me the rest of the drugs, and we went to sleep.

Leave a reply to Margie Lee Murray Cancel reply