Howard Rehs
My journey with ALS
Tag: life
-
April 2025 – 1st Week
I’ve been having more issues with swallowing, and my speaking is basically gone. So strange that I can think of what I want to say but cannot say it. I must stop eating certain foods. Anything that breaks up while chewing can cause a problem. On Tuesday, we went to Columbia for a blood and Read.
-
March 2025 – 1st Week
On Sunday morning (March 2), I started taking a new medication called Radicava. It’s a once-daily drug that must be taken at least eight hours after a major meal – ideally first thing in the morning – followed by an hour of fasting. The cycle is you take it for 2 weeks, then you are Read.
My Journey 