Howard Rehs
My journey with ALS
Tag: life
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July – 5th Week
On Friday evening, we had the show until 9, and a lot of people came to connect with me. Stuart Dunkel was there painting new works, and people came to meet him as well. After we headed back to the hotel, I went to the restaurant and watched everyone eat. When finished, I had Amy Read.
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July – 2nd Week
Friday afternoon, I worked on the Saturday email, and for dinner, Amy mixed spaghetti and meat sauce. I had my dessert and drugs, then got ready to sleep. I had my knee and leg massaged and went to sleep. On Saturday, I woke up a few times, and by 9:30, I had finished my breakfast Read.
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July – 1st Week – My Birthday
We headed out of the gallery and got home around 7. There were many items delivered that day, including two walkers. Amy decided to go to Carvel to get me some ice cream. We had dinner (and medication), and I had to finish our Comments on the Art Market email. I was working late, and Read.
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June – 4th Week
We left the city on Friday and got home before 7. Amy made a spicy mix, and it was good; then, I had some Carvel ice cream and took my two medications. I moved to my home office and finished up the email that goes out on Saturday morning. Finally, I got into bed, and Read.
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June – 2nd Week
(another long one, sorry) On Friday night, I had dinner before Donald and Hildy Teplitz got here. They brought dinner, and Amy and Teddy joined them. I sat with them and had some pineapple ice for dessert. They left around 9, and little Teddy stayed up pretty late. Amy slept with her in another room. Read.
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June – 1st Week
Saturday night was a little different than Friday night. Usually, I wake up once or twice to use the bathroom; on Friday, I slept the entire night because of PainQuil. On Saturday, I took PainQuil and woke up 7 times! I have a feeling that using the feeding tube with a lot of water may Read.
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May – 5th week
I woke up around 5 am on Saturday and took one of my general medications. I went back to bed and did not wake up until 10:30 … that was great! I had one waffle, 2 ½ Chobani yogurts, my protein shakes, and a new medication (Sertraline Hydrochloride – hopefully, this will help with the Read.
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May – 2nd Week
Friday night was nice. Randi and David Rosen came by for dinner. We played some music, and I did a fair bit of writing to be part of the conversation – I even used the ElevenLabs app, which has my voice on it. Saturday started late as I planned on relaxing for the weekend. Amy Read.
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April – 3rd Week
I was hoping that the weekend was going to be a relaxing one. Friday night I ended up being on my own. After dinner (I had two large pancakes and used a great deal of syrup), Amy had to go into the city to help a family member. I realized that I needed to get Read.
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April 2025 – 2nd Week
Weekend update (5th & 6th): Having a weekend break from Radicava was nice. I woke up at 8 am and started my medication and workout journey, rather than 5:30-6:00 am. I am taking Nuedexta 3 times a day (Dr. Andrews said that some people need more to help eliminate the crazy laughter). For the first Read.
My Journey 