Howard Rehs
My journey with ALS
Tag: health
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May – 5th week
I woke up around 5 am on Saturday and took one of my general medications. I went back to bed and did not wake up until 10:30 … that was great! I had one waffle, 2 ½ Chobani yogurts, my protein shakes, and a new medication (Sertraline Hydrochloride – hopefully, this will help with the Read.
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April 2025 – 2nd Week
Weekend update (5th & 6th): Having a weekend break from Radicava was nice. I woke up at 8 am and started my medication and workout journey, rather than 5:30-6:00 am. I am taking Nuedexta 3 times a day (Dr. Andrews said that some people need more to help eliminate the crazy laughter). For the first Read.
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April 2025 – 1st Week
I’ve been having more issues with swallowing, and my speaking is basically gone. So strange that I can think of what I want to say but cannot say it. I must stop eating certain foods. Anything that breaks up while chewing can cause a problem. On Tuesday, we went to Columbia for a blood and Read.
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March 2025 – 1st Week
On Sunday morning (March 2), I started taking a new medication called Radicava. It’s a once-daily drug that must be taken at least eight hours after a major meal – ideally first thing in the morning – followed by an hour of fasting. The cycle is you take it for 2 weeks, then you are Read.
My Journey 