Howard Rehs
My journey with ALS
Tag: family
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May – 2nd Week
Friday night was nice. Randi and David Rosen came by for dinner. We played some music, and I did a fair bit of writing to be part of the conversation – I even used the ElevenLabs app, which has my voice on it. Saturday started late as I planned on relaxing for the weekend. Amy Read.
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May – 1st Week
Saturday was ok. I spent the day at the show, and a few of our friendly and caring clients stopped by to spend some time with me. It seems the 5-hour laughing issue I had caused a problem with the right side of my jaw, which feels inflamed and painful when I chew or yawn Read.
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April – 4th Week
Well, I thought Saturday was going to be fun as the second opening for the Bloom exhibition was taking place, but when we left the house (using a cane that Amy got me that morning), I fell down the front steps and damaged my knee, chin, lip and little finger on my left hand. Luckily, Read.
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April 2025 – 2nd Week
Weekend update (5th & 6th): Having a weekend break from Radicava was nice. I woke up at 8 am and started my medication and workout journey, rather than 5:30-6:00 am. I am taking Nuedexta 3 times a day (Dr. Andrews said that some people need more to help eliminate the crazy laughter). For the first Read.
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March 2025 – 1st Week
On Sunday morning (March 2), I started taking a new medication called Radicava. It’s a once-daily drug that must be taken at least eight hours after a major meal – ideally first thing in the morning – followed by an hour of fasting. The cycle is you take it for 2 weeks, then you are Read.
My Journey 