Howard Rehs
My journey with ALS
Tag: als
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July – 5th Week
On Friday evening, we had the show until 9, and a lot of people came to connect with me. Stuart Dunkel was there painting new works, and people came to meet him as well. After we headed back to the hotel, I went to the restaurant and watched everyone eat. When finished, I had Amy Read.
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July – 4th Week
On Friday night, I got home around 7, and my brother and his wife stopped by for dinner. They brought Italian food, so I sat in the kitchen, and Amy took my Chicken Parmesan and pureed it; it was very good. They also brought Carvel ice cream, so I had it for dessert. Then Alan Read.
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July – 3rd Week
We left the gallery and got home before 7:00. We had dinner; mine was White Castle ground up (which I was able to use to take my drugs) and then some vanilla ice cream with the RSO. After I was done, I decided to use the stopwatch on my phone to see how long it Read.
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July – 2nd Week
Friday afternoon, I worked on the Saturday email, and for dinner, Amy mixed spaghetti and meat sauce. I had my dessert and drugs, then got ready to sleep. I had my knee and leg massaged and went to sleep. On Saturday, I woke up a few times, and by 9:30, I had finished my breakfast Read.
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July – 1st Week – My Birthday
We headed out of the gallery and got home around 7. There were many items delivered that day, including two walkers. Amy decided to go to Carvel to get me some ice cream. We had dinner (and medication), and I had to finish our Comments on the Art Market email. I was working late, and Read.
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June – 2nd Week
(another long one, sorry) On Friday night, I had dinner before Donald and Hildy Teplitz got here. They brought dinner, and Amy and Teddy joined them. I sat with them and had some pineapple ice for dessert. They left around 9, and little Teddy stayed up pretty late. Amy slept with her in another room. Read.
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June – 1st Week
Saturday night was a little different than Friday night. Usually, I wake up once or twice to use the bathroom; on Friday, I slept the entire night because of PainQuil. On Saturday, I took PainQuil and woke up 7 times! I have a feeling that using the feeding tube with a lot of water may Read.
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May – 4th Week
Well, Friday was a very fine day. Alyssa showed up around 3 pm with the grandkids, and they kept me laughing. Around 5 pm, Rob and Lindsay Samuels showed up; they were amazing (they even brought beautiful flowers). Both loved playing with the grandkids and helped me as well. Amy got home around 6:30, and Read.
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May – 2nd Week
Friday night was nice. Randi and David Rosen came by for dinner. We played some music, and I did a fair bit of writing to be part of the conversation – I even used the ElevenLabs app, which has my voice on it. Saturday started late as I planned on relaxing for the weekend. Amy Read.
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May – 1st Week
Saturday was ok. I spent the day at the show, and a few of our friendly and caring clients stopped by to spend some time with me. It seems the 5-hour laughing issue I had caused a problem with the right side of my jaw, which feels inflamed and painful when I chew or yawn Read.
My Journey 