Howard Rehs
My journey with ALS
Category: Uncategorized
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May – 5th week
I woke up around 5 am on Saturday and took one of my general medications. I went back to bed and did not wake up until 10:30 … that was great! I had one waffle, 2 ½ Chobani yogurts, my protein shakes, and a new medication (Sertraline Hydrochloride – hopefully, this will help with the Read.
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May – 4th Week
Well, Friday was a very fine day. Alyssa showed up around 3 pm with the grandkids, and they kept me laughing. Around 5 pm, Rob and Lindsay Samuels showed up; they were amazing (they even brought beautiful flowers). Both loved playing with the grandkids and helped me as well. Amy got home around 6:30, and Read.
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May – 2nd Week
Friday night was nice. Randi and David Rosen came by for dinner. We played some music, and I did a fair bit of writing to be part of the conversation – I even used the ElevenLabs app, which has my voice on it. Saturday started late as I planned on relaxing for the weekend. Amy Read.
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May – 1st Week
Saturday was ok. I spent the day at the show, and a few of our friendly and caring clients stopped by to spend some time with me. It seems the 5-hour laughing issue I had caused a problem with the right side of my jaw, which feels inflamed and painful when I chew or yawn Read.
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April – 4th Week
Well, I thought Saturday was going to be fun as the second opening for the Bloom exhibition was taking place, but when we left the house (using a cane that Amy got me that morning), I fell down the front steps and damaged my knee, chin, lip and little finger on my left hand. Luckily, Read.
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April – 3rd Week
I was hoping that the weekend was going to be a relaxing one. Friday night I ended up being on my own. After dinner (I had two large pancakes and used a great deal of syrup), Amy had to go into the city to help a family member. I realized that I needed to get Read.
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April 2025 – 2nd Week
Weekend update (5th & 6th): Having a weekend break from Radicava was nice. I woke up at 8 am and started my medication and workout journey, rather than 5:30-6:00 am. I am taking Nuedexta 3 times a day (Dr. Andrews said that some people need more to help eliminate the crazy laughter). For the first Read.
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April 2025 – 1st Week
I’ve been having more issues with swallowing, and my speaking is basically gone. So strange that I can think of what I want to say but cannot say it. I must stop eating certain foods. Anything that breaks up while chewing can cause a problem. On Tuesday, we went to Columbia for a blood and Read.
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March 2025 – 4th Week
Been dealing with all the issues. Had a meeting with Dr. Choi at NYU to go over the breathing machine that showed up pretty quickly. He gave me a bit more information about the device and asked me to start using it twice a day. Have to be honest, I have used it only a Read.
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March 2025 – 3rd Week
Since I did not have to take the Radicava that week, I was able to start my medication at 7 am. Then worked out, ate breakfast, showered and headed to the city. On the Monday, because we left a little later than normal, by the time we got into NYC, they closed all of our Read.
My Journey 