Howard Rehs
My journey with ALS
Category: Uncategorized
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August – 1st Week
Friday evening, we headed home, and Amy ordered Italian food. Amy’s brother and his wife (Mark and Sheryl from Florida) came over for dinner, and I did the typical dinner (mixed food, ice cream, drugs, etc.) in the kitchen. After they left, I made my way to the bedroom and got it – with a Read.
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July – 5th Week
On Friday evening, we had the show until 9, and a lot of people came to connect with me. Stuart Dunkel was there painting new works, and people came to meet him as well. After we headed back to the hotel, I went to the restaurant and watched everyone eat. When finished, I had Amy Read.
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July – 4th Week
On Friday night, I got home around 7, and my brother and his wife stopped by for dinner. They brought Italian food, so I sat in the kitchen, and Amy took my Chicken Parmesan and pureed it; it was very good. They also brought Carvel ice cream, so I had it for dessert. Then Alan Read.
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July – 3rd Week
We left the gallery and got home before 7:00. We had dinner; mine was White Castle ground up (which I was able to use to take my drugs) and then some vanilla ice cream with the RSO. After I was done, I decided to use the stopwatch on my phone to see how long it Read.
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July – 2nd Week
Friday afternoon, I worked on the Saturday email, and for dinner, Amy mixed spaghetti and meat sauce. I had my dessert and drugs, then got ready to sleep. I had my knee and leg massaged and went to sleep. On Saturday, I woke up a few times, and by 9:30, I had finished my breakfast Read.
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July – 1st Week – My Birthday
We headed out of the gallery and got home around 7. There were many items delivered that day, including two walkers. Amy decided to go to Carvel to get me some ice cream. We had dinner (and medication), and I had to finish our Comments on the Art Market email. I was working late, and Read.
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June – 4th Week
We left the city on Friday and got home before 7. Amy made a spicy mix, and it was good; then, I had some Carvel ice cream and took my two medications. I moved to my home office and finished up the email that goes out on Saturday morning. Finally, I got into bed, and Read.
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June – 3rd Week
We headed home on Friday, and it was another long drive. I will also add that the roads in New York SUCK. There are numerous potholes, and the areas where they cut open are often left rough. The amount of bumps we hit is crazy. Anyway, when we got home, Amy made me some spicy Read.
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June – 2nd Week
(another long one, sorry) On Friday night, I had dinner before Donald and Hildy Teplitz got here. They brought dinner, and Amy and Teddy joined them. I sat with them and had some pineapple ice for dessert. They left around 9, and little Teddy stayed up pretty late. Amy slept with her in another room. Read.
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June – 1st Week
Saturday night was a little different than Friday night. Usually, I wake up once or twice to use the bathroom; on Friday, I slept the entire night because of PainQuil. On Saturday, I took PainQuil and woke up 7 times! I have a feeling that using the feeding tube with a lot of water may Read.
My Journey 