Howard Rehs
My journey with ALS
Category: Uncategorized
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October – 2nd Week
On Saturday, we got up at 10:00, and Alex took me to the shower, and Amy showered me. When it was done, Amy moved me to the bedroom, and Alex got me dressed. We went to the kitchen and did my drugs and shake (I am using one shake at a time). Then I went Read.
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October – 1st Week
On Saturday, Alex arrived a little late, so I went to the bathroom around 11:30 and then showered with Amy. Afterward, I got dressed with Alex. Then I went to the kitchen for breakfast. After I went to the office to do some work, Alex took me to the bathroom around 2:40. Once I was Read.
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September – 5th Week
On Saturday, we woke up a little late, had my shower, dressed, and then went to the kitchen, where Amy took care of it. I then went to the chair in the living room and watched TV. Alex was heading out till Sunday, so he got a gentleman to handle me, Mike. He was great Read.
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September – 4th Week
On Saturday, I woke up at 10:20 and we went to the new bathroom. I first used a new wheelchair for the bathroom. I sat on the toilet, but it wasn’t secure. Hopefully, the guys will come back on Monday and fix it. Then Amy and I went to the shower, which was much better Read.
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September – 3rd Week
On Saturday, I woke up a bit late, and Alex took me to the kitchen for breakfast. Then I went to the living room and spent a good deal of time. I had lunch there, and around 5:30, Alex took me downstairs for a long shower. We returned to the living room, and I fell Read.
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September – 2nd Week
On Saturday, I woke up, and Amy took our car to the service station for new oil. When she returned, she helped me get onto the rollator. It moved forward, and I fell; I hit my head on the dresser (it was not very serious in my opinion). Amy called my brother and Mark to Read.
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September – 1st Week
I want to thank CROWNQUIAT for that work of art she gave me last week. I now have it hanging in my office. Saturday was a late start. Amy showered me, got me dressed, and we finally finished breakfast by close to 12:00. My brother and his wife came over by 1:00, as Amy & Read.
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August – 4th week
We stayed in the gallery until around 8:00 and then headed home. When we arrived, Alex helped me get into the house. Then he helped me get into the bed, and I now have a lot of problems. Most of the time, I end up falling face down, and then they need to move me Read.
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August – 3rd week
We got home on Friday around 7:00, and Alex needed to visit with his mom, so Amy and I had dinner together. After I used ice cream to take the drugs, brushed my teeth, and then Amy helped me get to the bedroom and onto the bed. I finally went to sleep. Saturday, we woke Read.
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August – 2nd Week
Friday evening, we got home (Alex helped me get into the house), and Amy had to go to CVS to get a patch for me that might help with the saliva (Scopolamine Transdermal System), and picked up Italian food (there are a lot of things in the living room: walkers, etc.). Alex helped put the Read.
My Journey 