I first went to a pulmonologist at NYU (recommended by Dr. Andrews). They initially had me do several breathing tests … seems I am still ok. Checked my weight … still ok. Then we met with Dr. Choi  … another really nice person. He went through many things with us and is getting me a coughing assist machine … will take a week or two.

Later that day I had a virtual meeting with a genetic counselor from Columbia. They are open to taking blood and skin biopsy to have me in a clinical trial … could take a few years to see if they find a drug that will help. Continued my medication regiment and looked forward to Sunday morning when I would be off the Radicava for 2 weeks.