Howard Rehs

My journey with ALS

Early Medication Routine

For the first two weeks, I continued with my medications, which makes for quite the early morning routine:

By 6 AM: Take Radicava.

Then I decided to start working out: About 25 minutes every morning. Elliptical, weights, sit ups … trying to keep my muscles strong since I was beginning to see some weakness in the left leg.

By 7 am: Take Doxycycline and Riluzole (best on an empty stomach).

Another hour later: Take Neudextra, Mucinex, eat some food, and take the Deanna Protocol supplement (which needs to be taken at least three times a day with meals).

Then we head to the gallery: I take the supplement during lunch.

Evening routine: Take Neudextra, Riluzole, Mucinex, and the supplement.

And in case you are wondering, the Radicava drug is very expensive — a bit over $17,000 for the first batch, then it drops to $12,000. Again, you take it for two weeks, then you are off for two weeks. Thankfully, I am on Medicare … so the insurance company covers most of the cost.

Radicava Cost
Radicava Cost

Gotta love dealing with all of this!

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Howard Rehs